You & ME
Patient Registry and Symptom Tracking App
Case Study
Healthcare
Web App
Mobile App
UI/UX Design
Solve ME is the largest non-profit fighting chronic fatigue syndrome (CFS), Long COVID, and other post-infection diseases. The company strives to engage the entire patient community in research to make these illnesses diagnosable and treatable.
How we helped:
4,300+
participants enrolled
GLOBAL REACH
launched in the US and Australia, soon in the UK
38,000
days worth of data tracked
Patient Registry
Topflight joined forces with Solve ME to build the largest registry that brings together patients and researchers.
The registry’s goal is to gather a massive global data set and empower further medical research on CFS and other post-infection diseases. Here’s how we did it.
+
90% of patients with CFS are not diagnosed
at least 75% of patients are unable to work or attend school
CFS affects an estimated 836,000 to 2.5 million Americans
Health Data Bank
To get the patient data flowing into the data bank, we first had to engage people diagnosed with CFS. We built a web app with straightforward onboarding that takes participants through an informed consent & questionnaire to achieve that.
Once onboarded, users can hop in and out of surveys while the app saves their progress. Participants can also submit their health conditions, surgeries, and past or ongoing treatments and medications.
Survey dashboard
COVID-19 tracking feature
Complete user profile
Outstanding net promoter score
Auto-assigned clinical criteria for participants
Symptom Tracking Mobile App
To make the user experience more captivating and rewarding, we developed a mobile symptom tracking app.
Participants use the app to add symptoms, treatments, life events, activity levels, and overall wellness. The app then visualizes this data to help them better understand their health trends.
Calendar
Web Portal for Registry Managers
The registry works in tandem with a web app for Solve ME employees. That’s where all surveys and questionnaires are created and managed. All data can be also easily exported.
In addition to individual surveys, registry managers can group surveys into mini studies and schedule them to go out to participants regularly.
Manage participants, surveys, questionnaires, and admins
Track a log of all admin actions
Web Portal for Researchers
Finally, the client plans to add a web portal for independent researchers and organizations seeking treatments for the disease. The portal will provide researchers with aggregated, de-identified patient data from the registry.
Filter, view, and export anonymized patient data
Cutting-Edge Cybersecurity
Since protected health information (PHI) was the core of the platform, we had to ensure complete HIPAA compliance of the registry and mobile companion app. Therefore we focused on creating secure architecture using a cutting-edge tech stack and cybersecurity best practices.
Informed and individualized consent from users
Tech stack
Back-end
Web apps front-end
Mobile app
Node.js, AWS, AWS Cognito, MongoDB, MongoDB Atlas, SSL, React.js, React Native, Redux, “Charts” library, React-native-calendars
Outcome
Solve ME is on its way to garnering the most extensive data set on the CFS disease, which will inevitably lead to new discoveries in diagnosing and treating the disease. Topflight is fully committed to helping the company grow the registry and expand it to more countries.
Cross-platform mobile developmentt
Advanced cybersecurity to protect PHI
Rich data visualization for web and mobile
Intuitive, frictionless UX/UI
User journal
Data visualization
Notifications
Create and schedule emails for participants based on their activity
Search and export responses based on advanced filters
See the number of participants with biosamples available
Email biosample request to a registry manager
Get notified and connect with new groups that have used samples
Anonymized patient data
Two-factor authentication
Data encryption at rest and in sync
Great App!
The app design is beautiful, intuitive, and easy to use. It’s reliable, tracks relevant data, graphs it. All good stuff. Thanks, y’all! Fabulous to have this tool.
Picadilly23, 08/25/2020
Cross-platform mobile development
Advanced cybersecurity to protect PHI
Rich data visualization for web and mobile
Intuitive, frictionless UX/UI
They’re really good partners in navigating an ever-increasing mandate to get this large project off the ground. Our overall satisfaction is really high for such a complex project.
Allison Ramiller
Director, Research Programs at Solve ME
After speaking with Topflight, we found that they were really receptive to the vision and were interested in the mission-driven aspect of the work — they also seemed really committed to helping us realize it.
Allison Ramiller
Director, Research Programs at Solve ME
So glad this exists!
So grateful for the Solve ME CFS Initiative for building this app and doing the important work of collecting data for research into a cure.
Llukech, 09/21/2020
4,300+ participants enrolled
COVID-19 control group set up
Launched in the US and Australia
Working on a release for the UK
7/10 satisfaction rating
1,300+ downloads
38,000 days tracked
After speaking with Topflight, we found that they were really receptive to the vision and were interested in the mission-driven aspect of the work — they also seemed really committed to helping us realize it.
Allison Ramiller
Director, Research Programs at Solve ME
After speaking with Topflight, we found that they were really receptive to the vision and were interested in the mission-driven aspect of the work — they also seemed really committed to helping us realize it.
Allison Ramiller
Director, Research Programs at Solve ME
I just think they bring a lot of commitment to the project. Any time we have a certain requirement, they really try to understand our needs and deliver, so they really share the dedication and passion for the project with us.
Allison Ramiller
Director, Research Programs at Solve ME
After speaking with Topflight, we found that they were really receptive to the vision and were interested in the mission-driven aspect of the work — they also seemed really committed to helping us realize it.
Allison Ramiller
Director, Research Programs at Solve ME
90% of patients with CFS are not diagnosed
at least 75% of patients are unable to work or attend school
CFS affects an estimated 836,000 to 2.5 million Americans
Cross-platform mobile development
Advanced cybersecurity to protect PHI
Rich data visualization for web and mobile
Intuitive, frictionless UX/UI
© 2023 Topflight LLC. All rights reserved. Topflight is an equal opportunity employer.
© 2023 Topflight Foundation. Topflight Foundation is a 501(c)(3) and all donations are tax-deductible. EIN 82-2671514
Total Cost: 6,000 hours
Length: 2 years 7 months
Type: Prototype, Development, Ongoing
MVP v1: 700 hours, 5 months
Type: Prototype, Development, Ongoing
Length: 2 years 7 months
Total Cost: 6,000 hours
MVP v1: 700 hours, 5 months
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